Shared Decision Making in the Era of Evolving Treatment Options for Aortic Valve Disease
In the era of advancing treatment options for valve disease, it is vital that patients understand how true shared decision making can be achieved. Shared decision making is more than just patient education. It’s about feeling confident in the decisions you make about your care. Ask yourself – do you feel confident in your understanding of valve disease? Do you feel sure that your doctor understands your concerns and desires?
Roseanne Palmer is a master’s prepared RN, graduating from Sacred Heart University in Connecticut. Throughout her career, she has been a dynamic advocate for the patient voice. Her work in critical care, palliative care, healthcare administration and, most recently, structural heart and valvular heart disease, create the foundation and her passion for shared decision making in clinical practice. She has participated in research, published and speaks on issues related to patient-centered goals and shared decision making. She currently practices at Dartmouth Hitchcock Medical Center
Watch the recording of this educational webinar on how to achieve true shared decision making in your health care HERE
A Future without Heart Valve Reoperations
WHY: For children who need Right Ventricular Outflow Tract reconstruction, existing pulmonary heart valve implants are invaluable life-savers but not a deﬁnitive soluon. Are the latest technologies going to improve their future options?
WHO: Professor Gerardus Bennink, University of Cologne (Please click HERE to learn more about Dr. Bennink)
WHAT: Insights on current and upcoming treatment solutions currently in U.S. trials. A future without re-operations? New horizons in pulmonary heart valve therapy.
Join us and watch this brand new engaging webinar. You can register and view the webinar HERE
You can download the PDF of the presentation here: A Future Without Heart Valve Reoperations
Mended Hearts and Mended Little Hearts Advocacy Priorities
Presented by: Andrea Baer, MS, Mended Hearts Director of Patient Advocacy
In early 2016, Mended Hearts and Mended Little Hearts advocates voted to select the organization’s national advocacy priorities. Through this webinar you will have the chance to learn about the five chosen priorities, the challenges that patients and families face, and why the organization believes that through advancing these five priorities, Mended Hearts and Mended Little Hearts will be able to improve the lives of heart patients across the lifespan.
To access this webinar, click here
To access the PDF copy of the presentation, click here
Eliminating Barriers to Innovative Medicines
Presented by: Scott Leezer, Director of Government Affairs, The Federal Group; Mike Capaldi, AVP, Cardiovascular Public Affairs for Sanofi US
There are many factors that may limit a cardiovascular patient’s ability to access the newest, innovative prescription medications. Accessing affordable treatments is vital for all Americans, especially for those with chronic, potentially life-threatening conditions, such as cardiovascular disease. This webinar will cover what Mended Hearts can help do to ensure that all cardiovascular patients have access to the best treatments available.
To access this webinar, click here
The 21st Century Cures Act: Why is it important?
The pace of scientific advancement over the past two decades, including the mapping of the human genome, has been impressive, giving us a myriad of genetic clues about the underpinnings of disease. Translating these discoveries into new treatments for patients, however, has proven to be difficult. The 21st Century Cures Act accelerates the discovery, development and delivery of life saving and life improving therapies, and transforms the quest for faster cures. Through this webinar you will learn why this is vital to cardiovascular patients across the lifespan.
Expanding Access to Cardiac Rehab
Cardiac Rehab has been shown to be a vital part of recovery and long term success after a cardiac event. Despite this fact any people do not have the ability to access cardiac rehab. One of the advocacy priorities of Mended Hearts is to expand the access to cardiac rehab to improve outcomes. During this webinar we will cover the importance of cardiac rehab, the barriers to access for patients, and how Mended Hearts can help.
To access this webinar, click here
To access the PDF version the presentation, click here
Mended Little Hearts Webinars
Stephanie Mohl of the American Heart Association speaks about key decisions when choosing health insurance, new insurance options, and other helpful tools.
Dr. Nicolas Madsen talks to CHD parents, patients and families about exercise for the CHD patient.
Jean Connor PhD, RN, CPNP, Director of Nursing Research for Cardiovascular & Critical Care Services at Children’s Hospital of Boston, will present information on the economic burden of congenital heart disease treatment on families. Rising healthcare costs and cost shifting by employers, healthcare organizations and insurers have resulted in higher out-of-pocket payments for families who have insurance. For families of children with congenital heart disease (CHD), medical and non-medical costs associated with the condition begin almost immediately. Medical and surgical advances in the treatment of CHD have allowed previously life-threatening defects to be managed as chronic illnesses. This webinar will review research conducted by Jean Connor on the meaning of cost for families of children with CHD.
In this webinar, Dr. James Kuo of Cook Children’s will talk about cardiac catheterization. Many children with congenital heart disease will need a cardiac catheterization at some point in their lives, and this can be scary for kids and their families. Dr. Kuo will explain what cardiac catheterization is, why it is done, how it is done, and what else can be done during a catheterization. We hope this information will make parents and caregivers feel more empowered when making choices in caring for their children.
Learn about some of the major structural heart defects and how they occur. This is an overview and can help you understand these defects so you can give support to others and have a better understanding of CHDs in general.
Presented by Beth Jarosz, RN, MS and Vicki Freedenberg, RN, PhD of Children’s National Heart Institute.
This webinar explains Trans-catheter valve replacement in children and teens—what it is, how it works, and the risks and benefits.
In this webinar, Dr. Brad Marino talks about neurodevelopmental issues that can happen in children with congenital heart defects, how parents can recognize them and what resources are available to parents and caregivers.
Mended Hearts gratefully acknowledges the support of Amgen, AstraZeneca, Edwards Lifesciences Foundation, Novartis, and Sanofi Regeneron.