All Blog Articles

HeartSurgeryPreperation

Preparing an Older Child for Heart Surgery or Cath—From the Experts Themselves

Posted In: Mended Little Hearts Blog

  Getting through a child’s heart surgery or cardiac catheterization (cath) is hard enough when the child is little and doesn’t really understand what is happening, but preparing an older child or young adult for a major heart procedure can be difficult for parents and for the older child. Luckily, there are experts—the patients themselves … Continue reading “Preparing an Older Child for Heart Surgery or Cath—From the Experts Themselves”

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Mended Hearts California

Chapter Spotlight: San Luis Obispo, California

Posted In: Mended Hearts Blog

  It is not surprising that Michael Mariscal has achieved so much with Mended Hearts Chapter 415 so quickly. After his own cardiovascular experiences he decided it was something he needed — and, likely, what others needed as well. His journey in health began with a heart attack in 2007, a time when he lived … Continue reading “Chapter Spotlight: San Luis Obispo, California”

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Rejected Insurance Claim Form

Access to Life-Saving Medications is Being Denied

Posted In: Mended Hearts Blog

  “The fight for my PCSK9 took almost two years and highlights the need for us to continue in the fight for access to life-saving medications for all heart patients.” – Donnette Smith, President of Mended Hearts. The non-profit Institute for Patient Access is in the process of revealing health care report cards for all … Continue reading “Access to Life-Saving Medications is Being Denied”

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Mended Little Hearts and The Mighty

We’re Partnering With The Mighty to Help People with Congenital Heart Disease!

Posted In: Mended Little Hearts Blog

  We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness … Continue reading “We’re Partnering With The Mighty to Help People with Congenital Heart Disease!”

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Let Them Say, ‘He Lived a Life!’

Posted In: Mended Little Hearts Blog

  Recently, I had one of the most wonderful medical professionals I know, a Nurse Practitioner who literally saved my son’s life, tell me something that has transformed the way I think about my family’s journey with a congenital heart defect (CHD). She described a young man who passed away in his early 20s whose … Continue reading “Let Them Say, ‘He Lived a Life!’”

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Medicaid Covered More Than Half the Costs to Save My Son’s Life

Posted In: Mended Little Hearts Blog

  My son, Angus, was born with a congenital heart defect (CHD) that was repaired shortly after his birth. Approximately 40,000 babies, 1 in 110, are born with CHD each year. We learned about his heart defect at my 20-week pregnancy check-up and were immediately referred out to a pediatric cardiologist. It was devastating. I never … Continue reading “Medicaid Covered More Than Half the Costs to Save My Son’s Life”

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Connecting With Others Can Lead to Success

Posted In: Mended Hearts Blog

  “I have been where you are; I know how you feel.” That’s a powerful statement. The sense of connection and bonding that can happen is soothing and often one of the keys to a successful recovery. Individuals who are going through a medical crisis or learning to change their lifestyle can find success in … Continue reading “Connecting With Others Can Lead to Success”

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Fontan parent support

What I Need as a Fontan Parent: From Diagnosis to the Future

Posted In: Mended Little Hearts Blog

We were asked what we needed in the past, what we need now and what we need for the future as a Fontan parent.  Here is our response. Upon diagnosis, I needed: Medical professionals to understand that my brain entered fight-or-flight mode the second I heard something was wrong with my baby’s heart.  I needed … Continue reading “What I Need as a Fontan Parent: From Diagnosis to the Future”

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CHD Week 2018. Jodi Lemacks discusses importance of awareness of congenital heart defects.

Why Is CHD Awareness So Important?

Posted In: Mended Little Hearts Blog

On the first day of CHD Awareness Week, I have been thinking about what CHD Awareness means — why is it so important? To answer that, I think I have to go back to that very first day when I heard that there was something wrong with my baby’s heart. You see, I read What to … Continue reading “Why Is CHD Awareness So Important?”

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Mended Hearts Savanna, Georgia Chapter

Chapter Spotlight: Savannah, Georgia

Posted In: Mended Hearts Blog

Typically, new chapters of Mended Hearts form when patients come together and organize. But in the case of Chapter No. 407 in Savannah, Georgia, it was the local hospital that led the charge. Memorial University Medical Center’s head cardiologist, Jeremy London, M.D., and the hospital’s cardiac nurse educator, Janet Steffen, saw the need for a … Continue reading “Chapter Spotlight: Savannah, Georgia”

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Choose a diet that you can stick to. Simple changes like cutting processed foods and sugary drinks can make a big difference in your health! https://t.co/Jy40UjTQRo

It's National Healthcare Volunteer Week and we wanted to take this opportunity to send a GIANT thank you to all of our volunteers. Your time, effort and dedication are greatly appreciated. Thank you for all you do! #HCVolunteerweek #1in110 #CHD