The Centers for Medicare and Medicaid Services (CMS) Person and Family Engagement Network (PFEN) is a collection of patients, families, advocates and caregivers who are interested in participating in groups or technical expert panels that help develop quality measures. PFEN is CMS’ primary way to recruit persons and families of all backgrounds and experiences to bring their perceptions into CMS’ quality measurement goals for Medicare and Medicaid. The experiences and insights of our members contribute to the development of measures that are impactful to better health and quality of care.
Visit the Person and Family Engagement Network
Congenital Heart Public Health Consortium (CHPHC)
European Patients’ Academy on Therapeutic Innovation (EUPATI): Patient Engagement Through Education. Providing patients with accessible and reliable information and training on medicines research and development and other therapeutic innovations. A patient-led partnership working across stakeholders to enhance patient engagement.
Visit the EUPATI
The Global Heart Hub is the first global non-profit organization established to provide a voice for those affected by cardiovascular disease. We are an alliance of heart patient organizations, aiming to create a unified global voice for those living with or affected by heart disease.
Visit the Global Heart Hub
The American Heart Association and the American Diabetes Association, along with industry leaders, have proudly launched the groundbreaking collaborative initiative Know Diabetes by Heart™ to reduce cardiovascular deaths, heart attacks and strokes in people living with type 2 diabetes.
Visit Know Diabetes by Heart
MedTech Color is a non-profit organization that advances the representation of persons of color in the medtech industry. The medtech industry serves hundreds of millions of people globally but suffers from the lost learnings and insights from persons of color who are largely absent from high-level decision making. There is immense, untapped potential from people of color, and MedTech Color is committed to providing and promoting opportunities for them to make a meaningful contribution to the industry.
Visit MedTech Color
Mental Health America (MHA) is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and to promote the overall mental health of all.
Visit Mental Health America
The Partnership to Advance Cardiovascular Health works to advance public policies and practices that result in accelerated innovation and improved cardiovascular health for heart patients around the world.
Founded in 1920, the National Health Council brings diverse organizations together to forge consensus and drive patient-centered health policy.
Visit the National Health Council
To achieve our mission and vision, the National Forum focuses on advancing health equity and the implementation of the ABCS (appropriate Aspirin use, Blood pressure management, Cholesterol control, and Smoking cessation) to prevent heart disease and stroke. Our overarching goal is to eliminate cardiovascular health disparities and achieve health equity. We define health equity as “attainment of the highest level of health for all people” and recognize that achieving health equity requires valuing everyone equally with focused and ongoing societal efforts to address avoidable inequalities, historical and contemporary injustices, and the elimination of health and health care disparities.
Visit the National Forum
The goal of the annual awareness day on February 22 is to increase recognition of the specific risks and symptoms of heart valve disease, improve detection and treatment, and ultimately save lives. While heart valve disease can be disabling and deadly, available treatments can save lives, making education and awareness particularly important. On this day and throughout the year, the campaign partners—100+ non-profits, advocacy organizations, professional societies, foundations, and hospitals and heart centers—are helping to spread the word about valve disease.
Learn more about Valve Disease Awareness
A leader and convener in global cardiovascular health, the World Heart Federation champions heart health and acts to reduce the global burden of heart disease and stroke, which together claim 18.5 million lives every year. Our membership of more than 200 heart foundations, scientific societies and patient organizations in more than 100 countries is an active hub, promoting heart health and driving change at the local, regional and global level. As the principal representative body of the global cardiovascular community, WHF brings together a diverse network of multi-sectoral actors to share knowledge, guide policy, and provide people with the tools they need to live longer, healthier lives.
Visit the World Heart Federation