The following are advocacy initiatives that Mended Hearts and Mended Little Hearts have taken and/or supported in 2016-2017:

  • Members of Congenital Heart Public Health Consortium Policy Committee are represented on American Heart Association’s National Advocacy Coordinating Committee
  • ACE Kids Act: Working to establish the ACE Kids Act in the 115th Congress
  • Supporting the FDA User Fee Re-Authorization 2017
  • Members of the National Health Council
  • Members of the Person and Family Engagement Network
  • Participate on the WISH (Working to Improve School Health) policy committee
  • Supported and sent representatives to Pediatric Congenital Heart Association’s Legislative Conference advocating for congenital heart disease research funding (NIH and DOD) and surveillance (CDC)
  • 21st Century Cures Act: Signed on to letters, grassroots advocacy campaign
  • Supported the Medical Debt Relief Act of 2015
  • Participate in the AFib Optimal Treatment Task Force and efforts to improve anticoagulation of older patients with AFib. Supported report language in the FY 2016 Labor-HHS Appropriations bill to help Afib patients understand the need for anti-coagulation and correct misunderstandings of risks associated with falling
  • Signed on to a funding letter for the NCBDDD (National Center on Birth Defects and Developmental Disabilities)
  • Join with the American Heart Association, the American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) and the National Association for Medical Direction of Respiratory Care (NAMDRC) to support a piece of legislation to improve cardiac rehabilitation utilization among women and minorities
  • Supported the federally-funded Rural and Community Access to Emergency Devices Program
  • Supports the Congenital Heart Futures Act Re-Authorization
  • Supported the Newborn Screening Saves Lives Re-Authorization Act
  • Signed on to legislation in support of Cardiac Rehab in Women and Minorities
  • Represented the patient voice in the Congressional Directed Medical Research Program for FY2014 and FY2015
  • Represented on the National Birth Defect Prevention Network, Parent Advisory Committee and the Advocacy Committee
  • Supported the National Coalition for Heart & Stroke Research for FY2017 funding for the CDC and the NIH

May the luck of the Irish be with you today!

Today the American College of Cardiology kicked off their Scientific Sessions in Orlando, Florida. Mended Hearts and Mended Little Hearts are working hard for our members this weekend. Shown here are President Donnette Smith (far left), Executive Vice-President Millie Henn (far right), along with local volunteers Linda Burns, Claire Jones, Catherine Lobien, and Meagan Houpt. ... See MoreSee Less

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Being connected with The Mended Hearts and Mended Little Hearts groups provides real-life answers to the question “How?” Read Andrea's story in our latest blog post.

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