Many people think older adults are the only age group affected by cardiovascular disease, but did you know that children may be born with certain heart conditions? These are called “congenital heart defects” or “congenital heart disease.” Some children also get heart disease at an early age. For example, some families have very high cholesterol and children may be diagnosed with Familial Hypocholesterolemia, or FH. Still other children may get a virus or bacteria that affects the heart. Even for adults with heart disease, the entire family may be affected. The good news is today there are many helpful resources for parents and families.


Parents of Children with Heart Disease

As a parent, our job is to protect our children. Since 2004, Mended Little Hearts has provided patients and families of children with congenital heart disease many services that directly improve their quality of life.


Siblings

Having a sibling that is going through a heart event is a scary experience. From not knowing what is going on, to having stressed and worried parents, makes your job as a sibling of a heart patient difficult. Mended Hearts and Mended Little Hearts is here to help support you and help you learn to support your sibling through their heart event.


Resources for Families

 

 

Mended Hearts HeartGuide®

 

 

Mended Little Hearts HeartGuide®

 

 

 

Transition From Hospital to Home

 

 

 

 

Things You May Be Feeling

 

 

 

 

Preparing For A Doctor Appointment

 

 

 

 

Neurodevelopmental Issues

 

 

 

 

Living with Congenital Heart Disease (CHD)

 

 

 

 

Managing Stress

 

 

 

Meet the Care Team

 

 

 

 

 

Caring for Yourself

 

 

 


Other Resources

Living Well with CHD: The Boston Children’s Hospital Guide to Cardiac Neurodevelopment


Support

Mended Hearts Open Forum

Mended Little Hearts Open Forum