Web Resources

AFib 4WARD is a website and patient tools dedicated to improving quality and consistency of care for patients needing anticoagulation treatment. AFib 4WARD is designed to help Healthcare Providers and patients engage in an informative conversation about AFib-related stroke risk, while also informing and encouraging a shared decision making process regarding treatment options.

 

a-little-fib

AlittleFib.org is a comprehensive website on atrial fibrillation (AFib) and AFib-related stroke. This website provides patients, family members, healthcare professionals, and caregivers a resource on managing AFib to prevent stroke including tools to assess risk, options for treatment and follow-up care. The website was created through a partnership of Mended Hearts, the National Stroke Association, Preventive Cardiovascular Nurses Association and Spirit Health Group.

 

AACVPR

American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) is dedicated to reducing morbidity, mortality and disability from cardiovascular and pulmonary disease through education, prevention, rehabilitation, research and disease management. Central to the core mission is improvement in quality of life for patients and their families.

 

Aortic Hope (501c3 Charity) is a community of patients, survivors, and caregivers living with an aortic disease. The community’s goals are to spread hope, create awareness, and provide support to patients, survivors, and caregivers during the recovery and management of aortic disease.  Aortic Hope spreads hope through inspirational stories, Hope Mail Care Packages and its Weekly Saturday Survivor Series. In addition, Aortic Hope participates in educational conferences and events, including the John Ritter Foundation for Aortic Health Community Symposium, to help educate the public about aortic disease.  Finally, Aortic Hope supports patients through online support groups and Facebook Live chats where patients and their families can get answers to questions, learn new information, and be part of a community.  www.aortichope.org

association-of-black-cardiologists

Association of Black Cardiologists (ABC) is a non-profit organization with an international membership of 2,500 health professionals, lay members of the community (Community Health Advocates), corporate members, and institutional members. The ABC is dedicated to eliminating the disparities related to cardiovascular disease in all people of color.

 

cardiosmart

CardioSmart is the patient education and empowerment initiative brought to you by the American College of Cardiology whose mission is to help individuals prevent, treat and manage cardiovascular disease.

 

context-media-health

ContextMedia:Health delivers educational videos and digital content to hospital waiting rooms and exam rooms across the country. Mended Hearts has partnered with ContextMedia:Health to deliver material from Mended Hearts’ media library to heart patients and caregivers before and during their physician consultations. This collaboration gives Mended Hearts a way to reach patients in doctors’ offices and other healthcare settings at times when they are most in need of support.

If your medical office or health system is interested in learning about working with ContextMedia:Health, please print this flyer or visit http://www.contextmediahealth.com/.

 

 

The Heart Failure Society of America (HFSA) is committed to raising awareness about heart failure to those affected by this disease (patients, their families, and individuals at risk) and educating professionals who treat this disease.  Heart failure educational materials and resources can be found on the HFSA website.

 

million-hearts

Million Hearts is a national initiative with an ambitious goal to prevent 1 million heart attacks and strokes by 2017. The Centers for Disease Control and Prevention and the Centers for Medicare & Medicaid Services co-lead the initiative on behalf of the U.S. Department of Health and Human Services.

 

national-stroke-assocation

National Stroke Association (NSA) provides stroke education and programs to stroke survivors, caregivers, and the healthcare community. NSA believes that caregivers and the survivor’s circle of support are the core to their recovery. Programs and materials are provided to the stroke community for free.

 

NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. To get your own prescription discount card, click here

 

PAN-foundation

The Patient Access Network (PAN) Foundation is an independent, national 501 (c)(3) organization dedicated to helping underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Patient Access Network Foundation
PO Box 221858
Charlotte, NC 28222
Phone: 1-866-316-7263
E-mail: contact@panfoundation.org
To visit this website go to: www.panfoundation.org

PCNA

Preventive Cardiovascular Nurses Association (PCNA) is the leading nursing organization dedicated to preventing cardiovascular disease through assessing risk, facilitating lifestyle changes and guiding individuals to achieve treatment goals.

 

scai

The Society for Cardiovascular Angiography and Interventions, or SCAI is the primary professional association for invasive and interventional cardiologists – physicians who diagnose and treat cardiovascular disease, as well as congenital and structural heart conditions, through catheter-based procedures, such as angioplasty and stenting.

The Together in HF Community was created by Novartis in support of heart failure (HF) patients and their caregivers. Our goal is to provide our members with a welcoming place to connect with others like themselves, as well as provide access to credible content from medical experts and resources to help better manage their or their loved ones’ condition. Novartis believes in putting patients first and that philosophy is at the heart of everything we do. We’re in this together and are dedicated to raising national awareness of HF.

Web Resources

  • Agency for Healthcare Research and Quality (AHRQ) Healthcare 411 – This multimedia site provides practical health care information, research findings, and data to help consumers and health providers make informed decisions about health care issues including heart conditions and treatments.
  • American College of Cardiology – The nation’s professional organization for cardiologists provides CardioSmart, a dynamic web source for patients
  • American Heart Association – Dedicated to providing you with education and information on fighting heart disease
  • American Stroke Association – Dedicated to providing you with education and information on fighting stroke
  • After My Bypass – This Society of Thoracic Surgeons Web site is designed to provide you with information about your coronary artery bypass graft procedure (heart bypass surgery) and contains information about medication, exercise, diet and other factors that will continue to protect your heart from future heart disease, and will help maintain your general health and well-being.
  • Blood Pressure Log – This site offers a free online journal allowing users to record, track, chart and share their blood pressure readings with their healthcare provider.
  • www.familyatheart.org – FamilyatHeart.org is devoted to providing useful information for your family’s well-being, particularly related to heart-healthy nutrition and physical activity for the whole family.
  • HeartFailureInfo.com – This site, provided by Medtronic, is designed to provide people living with heart failure access to basic information on heart failure and its symptoms, causes and management options.
  • MayoClinic.com – Provides valuable information on the causes of heart disease, preventing heart disease, and treatments.
  • MEDLINEplus Health Information – A service of the National Library of Medicine | National Institutes of Health.
  • National Women’s Health Information Center (NWHIC) – A health information and Federal publication referral service that provides a gateway to women’s health information from other government agencies, public and private organizations, and consumer and health care professional groups. 1-800-944-WOMAN, TDD 1-888-220-5466.
  • One Valve for Life – An educational resource on heart valve selection provided by Abbott.

Financial Aid/Prescription Assistance

  • Partnership for Prescription Assistance – The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them. Many will get them free or nearly free. Its mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. Through this site, the Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. To access the Partnership for Prescription Assistance by phone, you can call toll-free, 1-888-4PPA-NOW (1-888-477-2669).
  • Hill-Burton Free Medical Care Program – Hospitals and other health care facilities receive Federal funds for construction or modernization under the Hill-Burton Program. In return, these facilities provide a specific amount of free or below cost health care services to eligible people. Contact the program for a list of participating facilities as well as information on eligibility.

 

If what you are looking for is not on our site, take a look at our list of related links to other organizations sharing in our cause. Mended Hearts will consider additional links from other sources, either from non-profit sources or through carefully arranged sponsorships.


Note about third-party links:
Clicking certain links will open a new browser window with a site maintained by a third party, which is solely responsible for its content. Mended Hearts, Inc. does not control, influence, or endorse this site, and the opinions, claims, or comments expressed on this site should not be attributed to Mended Hearts, Inc. We are not responsible for the privacy policy of any third-party Web sites. We encourage you to read the privacy policy of every Web site you visit.