After the much-anticipated birth of a child with CHD, the reality of bringing him or her home can be both exciting and terrifying. While your child was in the hospital,…
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By: Maureen Snider Those first stormy days are a blur. The discovery of the heart defect, the diagnosis, the worry, the guilt, the fear: they all blend together like paint…
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By Allison McKay Is it okay to feel okay? I ask myself this question often, but as a mom of a heart baby, I’m not sure I should. I…
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By Lindsay Davis I want to preface this article by stating that I find scars to be a beautiful thing that no one should be ashamed of. I wear…
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You may be wondering, “Why would I want to think about financial considerations now? I am focused on my child in the hospital. I’ll worry about that later. Financial…
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The financial impact on your family is probably the second-most stressful part of having a child with CHD. We make health care decisions based on what is best for…
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By Lindsay Davis Your high school classmates are picking out prom gowns, and you’re donning another hospital gown. They’re choosing colleges, and you’re meeting with your medical team to…
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By Lindsay Davis When you were 17, what did you consider your greatest threat? For me, it was receiving a failing grade, not getting into the school I aspired…
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By Melissa O’Donnell, new mom and new CHD advocate and student “I am going to send you to cardiology. It’s probably nothing, but I need you to go now.”…
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By Sara Toner I stepped into the role of being a heart mom not knowing where it would take me. I didn’t entirely understand the meaning of CHD, and…
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