All Mended Little Hearts Blog Articles

HeartSurgeryPreperation

Preparing an Older Child for Heart Surgery or Cath—From the Experts Themselves

Posted In: Mended Little Hearts Blog

  Getting through a child’s heart surgery or cardiac catheterization (cath) is hard enough when the child is little and doesn’t really understand what is happening, but preparing an older child or young adult for a major heart procedure can be difficult for parents and for the older child. Luckily, there are experts—the patients themselves … Continue reading “Preparing an Older Child for Heart Surgery or Cath—From the Experts Themselves”

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Mended Little Hearts and The Mighty

We’re Partnering With The Mighty to Help People with Congenital Heart Disease!

Posted In: Mended Little Hearts Blog

  We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness … Continue reading “We’re Partnering With The Mighty to Help People with Congenital Heart Disease!”

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Let Them Say, ‘He Lived a Life!’

Posted In: Mended Little Hearts Blog

  Recently, I had one of the most wonderful medical professionals I know, a Nurse Practitioner who literally saved my son’s life, tell me something that has transformed the way I think about my family’s journey with a congenital heart defect (CHD). She described a young man who passed away in his early 20s whose … Continue reading “Let Them Say, ‘He Lived a Life!’”

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Medicaid Covered More Than Half the Costs to Save My Son’s Life

Posted In: Mended Little Hearts Blog

  My son, Angus, was born with a congenital heart defect (CHD) that was repaired shortly after his birth. Approximately 40,000 babies, 1 in 110, are born with CHD each year. We learned about his heart defect at my 20-week pregnancy check-up and were immediately referred out to a pediatric cardiologist. It was devastating. I never … Continue reading “Medicaid Covered More Than Half the Costs to Save My Son’s Life”

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Fontan parent support

What I Need as a Fontan Parent: From Diagnosis to the Future

Posted In: Mended Little Hearts Blog

We were asked what we needed in the past, what we need now and what we need for the future as a Fontan parent.  Here is our response. Upon diagnosis, I needed: Medical professionals to understand that my brain entered fight-or-flight mode the second I heard something was wrong with my baby’s heart.  I needed … Continue reading “What I Need as a Fontan Parent: From Diagnosis to the Future”

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CHD Week 2018. Jodi Lemacks discusses importance of awareness of congenital heart defects.

Why Is CHD Awareness So Important?

Posted In: Mended Little Hearts Blog

On the first day of CHD Awareness Week, I have been thinking about what CHD Awareness means — why is it so important? To answer that, I think I have to go back to that very first day when I heard that there was something wrong with my baby’s heart. You see, I read What to … Continue reading “Why Is CHD Awareness So Important?”

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Brothers bear each other's burdens

Brothers Bear Each Other’s Burdens

Posted In: Mended Little Hearts Blog

  Every photo in the #RockYourScar photo contest has a story behind it. When the Heartbeat team saw Alessandro Perales’s photo, which includes a smaller photo of him and a fellow superhero in the upper right-hand corner, we had to know more. The second hero in the photo is Sebastian, Alessandro’s twin brother. The boys … Continue reading “Brothers Bear Each Other’s Burdens”

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Choose a diet that you can stick to. Simple changes like cutting processed foods and sugary drinks can make a big difference in your health! https://t.co/Jy40UjTQRo

It's National Healthcare Volunteer Week and we wanted to take this opportunity to send a GIANT thank you to all of our volunteers. Your time, effort and dedication are greatly appreciated. Thank you for all you do! #HCVolunteerweek #1in110 #CHD