By Jillian Villemaire As I’m sure many heart parents experience, I find myself anxious leading up to our six-month cardiology follow-ups. I get worried about what the doctors will say…
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By Julie Titterington My son Malcolm was born with several serious, complex congenital heart defects. They all have hopelessly specialized medical names — hypoplastic left heart syndrome, double-outlet right ventricle,…
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By: Jennifer Weiss Our son Lucas Hesselbach was born on June 8, 2018, with multiple congenital heart defects. He was diagnosed with hypoplastic left ventricle, double outlet right ventricle, coarctation…
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We got such an incredibly thoughtful surprise, which reminded me that despite all the scary and horrible things that are happening in the world, there are good people and good…
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By Allison McKay Is it okay to feel okay? I ask myself this question often, but as a mom of a heart baby, I’m not sure I should. I…
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By Lindsay Davis I want to preface this article by stating that I find scars to be a beautiful thing that no one should be ashamed of. I wear…
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You may be wondering, “Why would I want to think about financial considerations now? I am focused on my child in the hospital. I’ll worry about that later. Financial…
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The financial impact on your family is probably the second-most stressful part of having a child with CHD. We make health care decisions based on what is best for…
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By Lindsay Davis Your high school classmates are picking out prom gowns, and you’re donning another hospital gown. They’re choosing colleges, and you’re meeting with your medical team to…
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By Lindsay Davis When you were 17, what did you consider your greatest threat? For me, it was receiving a failing grade, not getting into the school I aspired…
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